Diagram of Behçet’s Symptoms Help to spread awareness of Behçet’s by sharing the diagram on social media. Feb 11th 2013 Birmingham Centre of Excellence for Behçet’s Disease A new centre which will revolutionise the experience and access to treatment for people with a rare and complex disease has opened in Birmingham.
A new centre which will revolutionise the experience and access to treatment for people with a rare and complex disease has opened in Birmingham.The Birmingham Centre of Excellence for Behçet’s Disease has opened at the Birmingham and Midland Eye Centre (BMEC), at City Hospital. Use the following links to find out more information about each clinic including contact details.Unfortunately, due to devolution the centres are only run by NHS England.
Other combinations leading to suspicion of the diagnosis could be the presence of two or three possible manifestations such as:For more information, contact Dr Deva Situnayake, clinical lead for the Birmingham Centre of Excellence for Behçet’s Disease (or one of his colleagues), on 0121 507 4243. Please follow the links below to find the current process for UK patients outside England.In addition to managing the NHS contract Behçet’s Patients Centres also provide Behçet’s Patients Support service for patients registered at a Centre of Excellence.This service funds a Behçet’s Patient Support Co-ordinator at each Centre of Excellence. The centre was funded by NHS Specialised Services Commissioning following a successful bid from the Behçet’s Syndrome Society, in partnership with doctorsspecialising in the disease from centres in London, Birmingham and Liverpool.Various schemes for diagnosis and classification have been suggested over the years, none of which are perfect, and there is no diagnostic blood test for the condition. Alternatively, for enquiries and high cost drug requests on the basis of the Behcet’s disease drugs pathway, email The symptoms of Behçet’s disease include recurrent oral and genital ulcers and potentially blinding eye inflammation. They provide a “one stop” service, aiming to provide the best care from diagnosis for this rare, chronic condition.The three National Centres of Excellence are based in London, Birmingham and Liverpool. A new centre which will revolutionise the experience and access to treatment for people with a rare and complex disease has opened in Birmingham. Birmingham Centre Clinic Address: Behçet’s Syndrome Centre of Excellence Sandwell and West Birmingham Hospitals Trust, Birmingham Midland Eye Centre, Dudley Road, Birmingham B18 7QH To access their website, please Behçet’s is a multisystem disease; it may involve all organs and affect the central nervous system, causing memory loss and impaired speech, balance and movement. A Quality of Life survey undertaken in 2008 by Behçet’s UK (then Behçet’s Syndrome Society) identified that on average it was taking 12 years for Behçet’s patients to receive a diagnosis.The Society began an application to the National Specialised Commissioning Group for Centres of Excellence to be established to treat patients with Behçet’s. Originally managed by Behçet’s UK, the NHS contract is now managed by the Behçet’s Patients Centres (a charitable company limited by guarantee). The core services involved in this approach include rheumatology, opthalmology and oral medicine, with additional input from specialities such as neurology, dermatology and gastroenterology.Behçet’s disease is a rare multi system vaculitic condition that causes inflammation of the blood vessels, mainly on the venous side of the circulation. The clinic is currently held most weeks on Fridays from 8.45am to 1pm, though plans are in hand to extend the number of clinics offered as the service develops.BMEC is one of only three centres in the country to offer a clinic of this kind. The effects of the disease may include blindness, stroke, inflammation in the spinal cord and intestinal complications.Doctors from the BMEC and the rheumatology department at City Hospital staff the clinic, as well as oral medicine doctors from Birmingham Dental Hospital. Behçet's UK - caring for those with a rare and complex disease Working with Behçet’s By Rebecca Hyder, Support Coordinator Birmingham What do a therapeutic radiographer, a firefighter, a head of UK training and development, and
326679) and represents Behçet's patients and their carers in the UK. • Birmingham and Midland Eye Centre (BMEC) Costa Coffee ground floor 8.30am - 3.30pm. Before joining Birmingham Behçet’s Syndrome Centre of Excellence BMEC Clinical Research Facility BMEC Surgical Skills Facility Cataract Cornea Day Surgery Unit Eye Clinic Liaison Fellowships Glaucoma Inflammatory Eye Diseases and We’ve created versions for sharing on Facebook here, Instagram here and Twitter here.
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